Publications

We recommend a number of publications to individuals, families, healthcare workers and researchers wishing to learn more about palliative care and end-of-life issues.

Plan ahead

My Wishes Alberta workbook

This workbook guides you to:

Think through what is most important to you about your life, health and personal care
Share your wishes with the people who matter most to you, as well as with your health care providers
Make sure your wishes are honoured

Completing this workbook will help prepare you and others to make important decisions about your care now and in the future. Find out more about advance care planning.

My Wishes Alberta was adapted from Coming Full Circle, a resource developed by the Canadian Virtual Hospice and a national Circle of Elders and Knowledge Carriers.

Get the workbook

Print version (fill by hand)

Print version (large print)

Fillable PDF (fill electronically)

Fillable PDF (large print)

Order professionally printed copies

Plan Ahead toolkit

The Plan Ahead toolkit supports community organizations in developing and facilitating initiatives to help community members plan ahead.

The toolkit contains Alberta-specific information on health, personal, financial and estate planning and provides guidance on running successful community initiatives on these topics.

Download the toolkit or browse a list of supporting material.

Other publications

Albertans’ views on advance care planning and palliative care: View the report of our March 2024 public poll of Albertans.

Publications by affiliated researchers

Dr. Amanda Brisebois

Earp, M., Fassbender, K., King, S., Biondo, P., Douglas, M., Brisebois, A., Davison, S., Sia, W., Wasylenko, E., Simon, J. Association between goals of care designation orders and healthcare resource use among seriously ill older adults in acute care: a multi-centre prospective cohort study Journal: CMAJ Open November 01, 2022 10 (4) E945-E955

Kirkland, S.W., Garrido-Clua, M., Kruhlak, M., Villa-Roel, C., Couperthwaite, S., Yang, E., Elwi, A., O’Neill, B., Duggan, S., Brisebois, A., Rowe, B.H. Comparison of characteristics and management of emergency department presentations between patients with met and unmet palliative care needs. PLoS One 2021; 16 (9):e0257501. doi: 10.1371/journal.pone.0257501.

Kruhlak, M., Kirkland, S.W., Garrido-Clua, M., Villa-Roel, C., Elwi, A., O’Neill, B., Duggan, S., Brisebois, A., Rowe, B.H. An assessment of the management of patients with advanced end-stage illness in the emergency department: an observational cohort study. J Palliative Medicine 2021; doi: 10.1089/jpm.2021.0004.

Sprange, A., Ismond, K., Hjartarson, Chavada, Carbonneau, Kowalczewski, Watanabe, Brisebois, A., and Tandon. Advance Care Planning Preferences and Readiness in Cirrhosis: A Prospective Assessment of Patient Perceptions and Knowledge Journal of Palliative Medicine. Oct 16 2019.

Carbonneau, M., Davyduke, T., Spiers, J., Brisebois, A., Ismond, K.P., and Tandon, P. Patient Views on Advance Care Planning in Cirrhosis: A Qualitative Analysis. Canadian Journal of Gastroenterology and Hepatology. Vol. 2018, Article ID 4040518, 8 pages, July 2018.

Fletcher, C., Brisebois, A., Gauri, A., & Ha, D. MP18: Development and implementation of a workshop for advanced care planning and goals of care conversations in the emergency department. CJEM, 2018 20(S1), S46-S47. 2018

Brisebois, A., Tandon, P. Early Integration of Advance Care Planning (ACP) into Cirrhosis Care: Why we need it. Current Hepatology Reports. February 2018.

Brisebois, A., Ismond, K., Carbonneau, M., Tandon, P. Advance Care Planning (ACP) for specialists managing cirrhosis: a focus on patient-centered care. Hepatology. May 2018; 67 (5); p2025-2040

Ney, M., Brisebois, A. and Tandon, P. Integrating Palliative Principles into Cirrhosis Care: The Effect of Hepatic Encephalopathy. Chapter 9 in: Bajaj et al. Diagnosis and Management of Hepatic Encephalopathy: A Case-based Guide Jan 2018.

Fainsinger, R., Nekolaichuk, C.; Fainsinger, L.; Muller, V.; Fainsinger, L., Amigo, P., Brisebois, A., Burton-Macleod, S., Ghosh, S, Gilbert, R, Tarumi, Y, Thai, V., Wolch, G. What is stable pain control? A prospective longitudinal study to assess the clinical value of a personalized pain goal. Palliative Medicine, Dec 2017; 31(10): 913-920.

Tandon, P., Tangri, N., Thomas, L., Shaikh, T., Carbonneau, M., Ma, M., Jayakumar, S., Burak, K., Thomas, L., Zenith, L., Bailey, R., Abrams, J., Brisebois, A., Ferguson, T., Majumdar, S. A rapid bedside screen to predict unplanned hospitalizations in outpatients with cirrhosis: a prospective evaluation of the Clinical Frailty Scale. American Journal of Gastroenterology. Aug 2016:303.

Brisebois, A. Tandon, P. Integrating Palliative Care in Cirrhosis. Clinical Liver Disease Supplement Aug 2015. Online article and video supplement.

Brisebois, A., Burton-Mcleod, S., Hermosa, A., Tarumi, Y., Watanabe, S. The Interface of Radiation Oncology and Palliative Care in the 21st Century. Book Chapter in Palliative Radiation Therapy: Utilization of Advanced Technologies. Jan 2015. Nova Publishers.

Dr. Robin Fainsinger

Belayneh, M., Fainsinger, R., Nekolaichuk, C., Muller, V., Bouchard, S., Downar, J., Galloway, L., Ghosh, S., Hawley, P., Herx, L., Kmet, A., Lawlor, P. Edmonton Classification System for Cancer Pain: Comparison of Pain Classification Features and Pain Intensity across Diverse Palliative Care Settings in Canada. J Palliat Med. 2023 Mar;26(3):366-375. doi: 10.1089/jpm.2022.0187. Epub 2022 Oct 25.

Lau, J., Mazzotta, P., Whelan, C., Abdelaal, M., Clarke, H., Furlan, A.D., Smith, A., Husain, A., Fainsinger, R., Hui, D., Sunderji, N., Zimmermann, C. Opioid safety recommendations in adult palliative medicine: a North American Delphi expert consensus. BMJ Support Palliat Care. 2022 Mar;12(1):81-90. doi: 10.1136/bmjspcare-2021-003178. Epub 2021 Aug 13.

Agar, M.R., Chang, S., Amgarth-Duff, I., Garcia, M.V., Hunt, J., Phillips, J.L., Sinnarajah, A., Fainsinger, R. Investigating the benefits and harms of hypodermoclysis of patients in palliative care: A consecutive cohort study. Palliat Med. 2022 May;36(5):830-840. doi: 10.1177/02692163221082245.

Lowe, S.S., Nekolaichuk, C., Ghosh, S., Fainsinger, L., Quan, H., Fainsinger, R. Clinical characteristics of patients having single versus multiple patient encounters within a palliative care programme. BMJ Support Palliat Care. 2019 Sep;9(3):291-299. doi: 10.1136/bmjspcare-2015-000985. Epub 2016 Feb 4.

Smith, N., Hunter, K., Rajabali, S., Fainsinger, R., Wagg, A. Preferences for Continence Care Experienced at End of Life: A Qualitative Study. J Pain Symptom Manage. 2019 Jun;57(6):1099-1105.e3. doi: 10.1016/j.jpainsymman.2019.02.020. Epub 2019 Feb 28.

Gutteridge, T., Kumaran, M., Ghosh, S., Fainsinger, R., Klepstad, P., Tarumi, Y., Damaraju, S., Baracos, V.E. Single-Nucleotide Polymorphisms in TAOK3 Are Associated With High Opioid Requirement for Pain Management in Patients With Advanced Cancer Admitted to a Tertiary Palliative Care Unit. J Pain Symptom Manage. 2018 Oct;56(4):560-566. doi: 10.1016/j.jpainsymman.2018.07.011. Epub 2018 Jul 20.

Fainsinger, R., Nekolaichuk, C., Fainsinger, L., Muller, V., Fainsinger, L., Amigo, P., Brisebois, A., Burton-Macleod, S., Ghosh, S., Gilbert, R., Tarumi, Y., Thai, V., Wolch, G. What is stable pain control? A prospective longitudinal study to assess the clinical value of a personalized pain goal. Palliat Med. 2017 Dec;31(10):913-920. doi: 10.1177/0269216317701891. Epub 2017 Apr 24.

Voeuk, A., Nekolaichuk, C., Fainsinger, R., Huot, A. Continuous Palliative Sedation for Existential Distress? A Survey of Canadian Palliative Care Physicians' Views. J Palliat Care. 2017 Jan;32(1):26-33. doi: 10.1177/0825859717711301.

Wolch, G., Ghosh, S., Boyington, C., Watanabe, S.M., Fainsinger, R., Burton-Macleod, S., Thai, V., Thai, J., Fassbender, K. Impact of Adding a Pictorial Display to Enhance Recall of Cancer Patient Histories: A Randomized Trial. J Pain Symptom Manage. 2017 Jan;53(1):109-115. doi: 10.1016/j.jpainsymman.2016.11.001. Epub 2016 Nov 10.

Løhre, E.T., Klepstad, P., Bennett, M.I., Brunelli, C., Caraceni, A., Fainsinger, R., Knudsen, A.K., Mercadante, S., Sjøgren, P., Kaasa, S. From "Breakthrough" to "Episodic" Cancer Pain? A European Association for Palliative Care Research Network Expert Delphi Survey Toward a Common Terminology and Classification of Transient Cancer Pain Exacerbations. European Association for Palliative Care Research Network J Pain Symptom Manage. 2016 Jun;51(6):1013-9. doi: 10.1016/j.jpainsymman.2015.12.329. Epub 2016 Feb 26.

Wilson, K.G., Dalgleish, T.L., Chochinov, H.M., Chary, S., Gagnon, P.R., Macmillan, K., De Luca, M., O'Shea, F., Kuhl, D., Fainsinger, R. Mental disorders and the desire for death in patients receiving palliative care for cancer. BMJ Support Palliat Care. 2016 Jun;6(2):170-7. doi: 10.1136/bmjspcare-2013-000604. Epub 2014 Mar 4.

Seow, H., Dhaliwal, G., Fassbender, K., Rangrej, J., Brazil, K., Fainsinger, R. The Effect of Community-Based Specialist Palliative Care Teams on Place of Care. J Palliat Med. 2016 Jan;19(1):16-21. doi: 10.1089/jpm.2015.0063. Epub 2015 Oct 21.

Dr. Konrad Fassbender

Earp, M.A., Fassbender, K., King, S., Douglas, M., Biondo, P., Brisebois, A., Davison, S.N., Sia, W., Wasylenko, E., Esau, L., Simon, J. Association between Goals of Care Designation orders and health care resource use among seriously ill older adults in acute care: a multicentre prospective cohort study. CMAJ Open. 2022 Nov 1;10(4):E945-E955. doi: 10.9778/cmajo.20210155. Print 2022 Oct-Dec.

Xiao, J., Brenneis, C., Fassbender, K. Palliative care stakeholders in Canada. Health Res Policy Syst. 2022 Jun 6;20(1):61. doi: 10.1186/s12961-022-00855-w.

King, S., Douglas, M., Javed, S., Semenchuk, J., Ghosh, S., Dunne, F., Moledina, A., Fassbender, K., Simon J. Content of Serious Illness Care conversation documentation is associated with goals of care orders-a quantitative evaluation in hospital. BMC Palliat Care. 2022 Jun 29;21(1):116. doi: 10.1186/s12904-022-01006-2.

Xiao, J., Brenneis, C., Fassbender, K. Stakeholder perspectives towards implementing the national framework on palliative care in Canada. Health Policy. 2022 Jun;126(6):576-583. doi: 10.1016/j.healthpol.2022.01.011. Epub 2022 Jan 24.

Xiao, J., Simon, J., Wityk Martin, T.L., Biondo, P., Fassbender, K. Advance care planning dashboard: quality indicators and usability testing. BMJ Support Palliat Care. 2021 Nov 23:bmjspcare-2021-003071. doi: 10.1136/bmjspcare-2021-003071. Online ahead of print.

Xiao, J., Brenneis, C., Ibrahim, N., Bryan, A., Fassbender, K. Definitions of Palliative Care Terms: A Consensus-Oriented Decision-Making Process. J Palliat Med. 2021 Sep;24(9):1342-1350. doi: 10.1089/jpm.2020.0679. Epub 2021 Feb 18.

Duggleby, W., Pesut, B., Warner, G., Ruiz, K.J., Nekolaichuk, C., Ghosh, S., Hallström, L., Fassbender, K., Swindle, J., Holroyd-Leduc, J., Jackman, D., Woytkiw, T. Feasibility Study of a Volunteer Navigation Program in the Palliative Context. Am J Hosp Palliat Care. 2021 Aug;38(8):963-971. doi: 10.1177/1049909120965945. Epub 2020 Oct 8.

Douglas, M.L., Simon, J., Davison, S.N., Biondo, P., Ghosh, S., Kassam, A., Fassbender, K. Efficacy of Advance Care Planning Videos for Patients: A Randomized Controlled Trial in Cancer, Heart, and Kidney Failure Outpatient Settings. Med Decis Making. 2021 Apr;41(3):292-304. doi: 10.1177/0272989X20985836. Epub 2021 Jan 15. PMID: 33451263 Clinical Trial.

Fassbender, K., Biondo, P., Holroyd-Leduc, J., Potapov, A., Wityk Martin, T.L., Wasylenko, E., Hagen, N.A., Simon, J. Identification and operationalisation of indicators to monitor successful uptake of advance care planning policies: a modified Delphi study. BMJ Support Palliat Care. 2021 Feb 12:bmjspcare-2020-002780. doi: 10.1136/bmjspcare-2020-002780. Online ahead of print.

Watanabe, S.M., Faily, V., Mawani, A., Huot, A., Tarumi, Y., Potapov, A., Fassbender, K., Fairchild, A., Joy, A.A., King, K.M., Roa, W., Venner, C.P., Baracos, V.E. Frequency, Timing, and Predictors of Palliative Care Consultation in Patients with Advanced Cancer at a Tertiary Cancer Center: Secondary Analysis of Routinely Collected Health Data. Oncologist. 2020 Aug;25(8):722-728. doi: 10.1634/theoncologist.2019-0384. Epub 2020 Jun 9.

Biondo, P.D., King, S., Minhas, B., Fassbender, K., Simon, J.E.; Advance Care Planning Collaborative Research and Innovation Opportunities Program (ACP CRIO). How to increase public participation in advance care planning: findings from a World Café to elicit community group perspectives. BMC Public Health. 2019 Jun 3;19(1):679. doi: 10.1186/s12889-019-7034-4.

Kim, C.A., Chu, Q.S.C., Fassbender, K., Ghosh, S., Spratlin, J.L. Predictive Impact of Clinical Benefit in Chemotherapy-treated Advanced Pancreatic Cancer Patients in Northern Alberta. Am J Clin Oncol. 2018 Sep;41(9):867-873. doi: 10.1097/COC.0000000000000385.

Fassbender, K. Consensus Development Conference: Promoting Access to Quality Palliative Care in Canada. J Palliat Med. 2018 Jan;21(S1):S1-S8. doi: 10.1089/jpm.2017.0453.

Chan, M., Fassbender, K. Evaluating Public Engagement for a Consensus Development Conference. J Palliat Med. 2018 Jan;21(S1):S20-S26. doi: 10.1089/jpm.2017.0390.

Sims, M., Fassbender, K. Rapid Review and Synthesis of the Palliative Care Matters Scientific Evidence. J Palliat Med. 2018 Jan;21(S1):S15-S19. doi: 10.1089/jpm.2017.0389.

Kassam, A., Douglas, M.L., Simon, J., Cunningham, S., Fassbender, K., Shaw, M., Davison, S.N. Behaviors in Advance Care Planning and ACtions Survey (BACPACS): development and validation part 1. BMC Palliat Care. 2017 Nov 22;16(1):56. doi: 10.1186/s12904-017-0236-6.

Pesut, B., Duggleby, W., Warner, G., Fassbender, K., Antifeau, E., Hooper, B., Greig, M., Sullivan, K. Volunteer navigation partnerships: Piloting a compassionate community approach to early palliative care. BMC Palliat Care. 2017 Jul 3;17(1):2. doi: 10.1186/s12904-017-0210-3.

Sudore, R.L., Heyland, D.K., Barnes, D.E., Howard, M., Fassbender, K., Robinson, C.A., Boscardin, J., You, J.J. Measuring Advance Care Planning: Optimizing the Advance Care Planning Engagement Survey. J Pain Symptom Manage. 2017 Apr;53(4):669-681.e8. doi: 10.1016/j.jpainsymman.2016.10.367. Epub 2016 Dec 29.

Wolch, G., Ghosh, S., Boyington, C., Watanabe, S.M., Fainsinger, R., Burton-Macleod, S., Thai, V., Thai, J., Fassbender, K. Impact of Adding a Pictorial Display to Enhance Recall of Cancer Patient Histories: A Randomized Trial. J Pain Symptom Manage. 2017 Jan;53(1):109-115. doi: 0.1016/j.jpainsymman.2016.11.001. Epub 2016 Nov 10. PMID: 27838195 Clinical Trial.

Ries, N.M., Douglas, M., Simon, J., Fassbender, K. Doctors, Lawyers and Advance Care Planning: Time for Innovation to Work Together to Meet Client Needs. Healthc Policy. 2016 Nov;12(2):12-18.

Thai, V., Ghosh, S., Tarumi, Y., Wolch, G., Fassbender, K., Lau, F., DeKock, I., Mirosseini, M., Quan, H., Yang, J., Mayo, P.R. Clinical prediction survival of advanced cancer patients by palliative care: a multi-site study. Int J Palliat Nurs. 2016 Aug;22(8):380-7. doi: 10.12968/ijpn.2016.22.8.380.

Drummond, J., Wiebe, N., So, S., Schnirner, L., Bisanz, J., Williamson, D.L., Mayan, M., Templeton, L., Fassbender, K.; Community-University Partnership for the Study of Children, Youth, and Families. Service-integration approaches for families with low income: a Families First Edmonton, community-based, randomized, controlled trial. Trials. 2016 Jul 22;17:343. doi: 10.1186/s13063-016-1444-8. PMID: 27449358 Free PMC article. Clinical Trial.

Howard, M., Bonham, A.J., Heyland, D.K., Sudore, R., Fassbender, K., Robinson, C.A., McKenzie, M., Elston, D., You, J.J. Measuring engagement in advance care planning: a cross-sectional multicentre feasibility study. BMJ Open. 2016 Jun 23;6(6):e010375. doi: 10.1136/bmjopen-2015-010375.

Seow, H., Sutradhar, R., McGrail, K., Fassbender, K., Pataky, R., Lawson, B., Sussman, J., Burge, F., Barbera, L. End-of-Life Cancer Care: Temporal Association between Homecare Nursing and Hospitalizations. J Palliat Med. 2016 Mar;19(3):263-70. doi: 10.1089/jpm.2015.0229. Epub 2015 Dec 16.

Seow, H., Barbera, L., Pataky, R., Lawson, B., O'Leary, E., Fassbender, K., McGrail, K., Burge, F., Brouwers, M., Sutradhar, R. Does Increasing Home Care Nursing Reduce Emergency Department Visits at the End of Life? A Population-Based Cohort Study of Cancer Decedents. J Pain Symptom Manage. 2016 Feb;51(2):204-12. doi: 10.1016/j.jpainsymman.2015.10.008. Epub 2015 Oct 26.

Barbera, L., Seow, H., Sutradhar, R., Chu, A., Burge, F., Fassbender, K., McGrail, K., Lawson, B., Liu, Y., Pataky, R., Potapov, A. Quality Indicators of End-of-Life Care in Patients With Cancer: What Rate Is Right? J Oncol Pract. 2015 May;11(3):e279-87. doi: 10.1200/JOP.2015.004416. Epub 2015 Apr 28.

Fassbender, K., Watanabe, S.M. Early palliative care and its translation into oncology practice in Canada: barriers and challenges. Ann Palliat Med. 2015 Jul;4(3):135-49. doi: 10.3978/j.issn.2224-5820.2015.06.01. PMID: 26231810 Review

Dr. Cheryl Nekolaichuk

Duggleby, W., O'Rourke, H., Baxter, P., Nekolaichuk, C., Thompson, G., Peacock,S., Ghosh, S., Holroyd-Leduc, J., McAiney, C., Dube, V., Swindle, j., Panucco-Renaud, M. & Sana, S. (July 1, 2022). Building a new life: A qualitative study of how family carers deal with significant change. BMC Geriatrics, 22:551. Https://doi.org/10.1186/s12877-022-03236-8.

Duggleby, W., Pesut, B., Warner, G., Jovel Ruiz, K., Nekolaichuk, C., Ghosh, S., Halstrom, L., Fassbender, K., Swindle, J., Holroyd-Leduc, J., Jackman, D. & Woytkiw, T. (2021). A feasibility study of a volunteer navigation program in the palliative context. Submitted for publication. American Journal of Hospice and Palliative Medicine, 38(8):963-971. doi: 10.1177/1049909120965945

Duggleby, W., Lee, H. J., Nekolaichuk, C. & Fitzpatrick-Lewis-D. (2021). Systematic review of factors associated with hope in family carers of persons living with chronic illness. Journal of Advanced Nursing, 77: 3343-3360. doi: 10.1111/jan.14858

Collins, A., Ayre, S., Brulotte, T., Crowe, K., & Nekolaichuk C. (2021). A retrospective thematic analysis of patient, family, and staff creative art tiles developed on a tertiary palliative care unit. Am J Hosp Palliat Medicine, 38(3): 253-259.. doi: 10.1177/1049909120935833. (first published online June 29, 2020)

Pesut, B., Duggleby, W., Warner, G., Bruce, P., Ghosh, S., Holroyd-Leduc, J., Nekolaichuk, C. & Parmar, J. (2020. A mixed-method evaluation of a volunteer navigation intervention for older persons living with chronic illness (Nav-CARE): findings from a knowledge translation study. BMC Palliative Care, 19:159. https://doi.org/10.1186/s12904-020-00666-2

Duggleby, W., Pesut, B., Warner, G., Nekolaichuk, C., Hallstrom, L. K., Elliott, B., Swindle, J. & Ghosh, S. (published online October 10, 2020). Sustainability of a rural volunteer program (Nav-CARE): A case study. Rural and Remote Health 2020; 20 (4): 6112. https://doi.org/10.22605/RRH6112

Duggleby, W., O’Rourke, H., Swindle, J., Peacock, S., McAiney, C., Paxter, P., Thompson, G., Dube, V., Nekolaichuk, C., Ghosh, S., & Holroyd-Leduc, J. (August 11, 2020) Study Protocol: Pragmatic Randomized Control Trial of My Tools 4 Care- In Care (MT4C-In Care) A Web-Based Tool for Family Carers of Persons with Dementia Residing in Long Term Care. BMC Geriatrics 20:285 https://doi.org/10.1186/s12877-020-01690-w

Cottrell, L., Duggleby, W., Ploeg, J., McAiney, C., Peacock, S., Ghosh, S., Holroyd-Leduc, J.M., Nekolaichuk, C., Forbes, D., Paragg, & Swindle, J. (2020). Using focus groups to explore caregiver transitions and needs after placement of family members living with dementia in 24-hour care homes. Aging & Mental Health, 24(2): 227-232. https://doi.org/10.1080/13607863.2018.1531369 Epub 2018 Dec 27.

Tricou, C., Ruer, M., Nekolaichuk, C., Sigurdardottir, K., Perceau-Chambard, E., Bruera, E. & Filbet, M. (2019). Transcultural validation of the French version of the modified Edmonton Symptom Assessment Scale: The ESAS12-F. Journal of Palliative Medicine, 22(12):1553-1560. doi: 10.1089/jpm.2018.0578. Epub 2019 Jul 9.

Lowe, S., Nekolaichuk, C., Ghosh, S., Fainsinger, L., Quan, H., & Fainsinger, R. (2019). Clinical characteristics of patients having single versus multiple patient encounters within a palliative care program. BMJ Supportive & Palliative Care, 9(3); 291-299. Published Online First: 04 February 2016. doi: 10.1136/bmjspcare-2015-000985. Epub 2016 Feb 4.

Duggleby, W., Jovel Ruiz, K., Ploeg, J., McAiney, C., Peacock, S., Nekolaichuk, C., Holroyd-Leduc, J., Ghosh, S., Brazil, K., Swindle, J., Forbes, D. Woodhead Lyons, S., Parmar, J., Kaasalainen, S., Cottrell, L., & Paragg, J. (Oct 31, 2018). Mixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long term care facilities. Pilot and Feasibility Studies, 4:165. https://doi.org/10.1186/s40814-018-0356-7

Nekolaichuk, C. (2018, published online Jan 28, 2019). Living in the space between: Integrating art therapy techniques in palliative care. Canadian Art Therapy Association Journal, 31(2): 84-93. https://doi.org/10.1080/08322473.2018.1522571

Nekolaichuk, C., Huot, A., Gratton, V., Bush, S. H., Tarumi, Y., & Watanabe, S. (2017). Development of a French version of the Edmonton Symptom Assessment System-Revised: A pilot study of palliative care patients’ experiences. Journal of Palliative Medicine, 20(9): 966-976.

Duggleby, W., Struthers-Montford, K., Nekolaichuk, C., Cumming, C., Ghosh, S., Thomas, R., & Tonkin, K. (2017). Feasibility study of an online intervention to support male spouses of women with breast cancer. Oncology Nursing Forum, 44(6): 765-775. DOI: 10.1188/17.ONF.765-775.

Fainsinger, R., Nekolaichuk, C., Fainsinger, L., Muller, V., Fainsinger, L., Amigo, P., Brisebois, A., Burton-Macleod, S., Ghosh, S., Gilbert, R., Tarumi, Y., Thai, V., & Wolch, G. (2017). What is stable pain control? A prospective longitudinal study to assess the clinical value of a personalized pain goal. Palliative Medicine. DOI: 10.1177/0269216317701891

Voeuk, A., Nekolaichuk, C., Fainsinger, R., & Huot, A. (2017). Continuous palliative sedation for existential distress? A survey of Canadian palliative care physicians’ views. Journal of Palliative Care, 32(1): 26-33.

Duggleby, W., Tycholiz, J., Holtslander, L., Hudson, P., Nekolaichuk, C., Mirhosseini, N., Parmar, J., Chambers, T., Alook, A. & Swindle, J. (2017). A metasynthesis study of family caregivers’ transition experiences caring for community- dwelling persons with advanced cancer at the end of life. Palliative Medicine, 31(7): 602-616. DOI:10.1177/0269216316673548

Aoun, S. M., Slatyer, S., Deas, K., & Nekolaichuk, C. (2017). Family caregiver participation in palliative care research: Challenging the myth. Journal of Pain and Symptom Management, 53(5): 851-861.

Duggleby, W., Cooper, D., Nekolaichuk, C., Cottrell, L., Swindle, J. & Barkway, K. (2016). The psychosocial experiences of older palliative patients while participating in a Living with Hope program. Palliative and Supportive Care, 14: 672-679.

Struthers Montford, K., Duggleby, W., Cumming, C., Thomas, R., Nekolaichuk, C., Ghosh, S. & Tonkin, K. (2016). ‘All I can do is help’: Transition experiences of male spouse caregivers of women with breast cancer. Canadian Oncology Nursing Journal, 26(4); 312-317.

Duggleby, W., Robinson, C., Kaasalainen, S., Pesut, B., Nekolaichuk, C., MacLeod, R., Keating N., Santos Salas, A., Hallstrom, L., Fraser, K., Williams, A., Swindle, J. & Struthers-Montford, K. (2016). Which Way from Here? Navigation for the Care of Older Rural Adults with Terminal Illness. Canadian Journal of Aging, 35(2): 206-214. doi:10.1017/S0714980816000131.

Hui, D., Bansal, S., Strasser, F., Morita, T., Caraceni, A., Davis, M., Cherny, N., Kaasa, S., Currow, D., Abernethy, A., Nekolaichuk, C., Bruera, E. (2015). Indicators of integration of oncology and palliative care programs: An international consensus, Annals of Oncology, 26: 1953-1959. DOI:10.1093/annonc/mdv269.

Duggleby, W., Thomas, J., Struthers Montford, K., Thomas, R., Nekolaichuk, C., Ghosh, S., Cumming, C. & Tonkin, K. (2015). Transitions of male partners of women with breast cancer: Hope, guilt and quality of life. Oncology Nursing Forum, 42(2): 134-141. doi:10.1188/15.ONF.134-141

Javaheri, P. A., Nekolaichuk, C., Haennel, R., Parliament, M., & McNeely, M. Feasibility of a pedometer-based walking program for breast and head and neck cancer survivors undergoing radiation therapy (2015). Physiotherapy Canada, 67(2): 205-213 (Special Issue: Oncology).